The Girl Behind the Ball
Hi, I’m Chloe
I’ll be celebrating my 21st birthday in August 2026, and while my journey to get here hasn’t been the one I imagined, it’s made me who I am today.
My medical story began around the age of 18 months with persistent chest infections and febrile convulsions. By the time I was five, things took a serious turn, and between then and now I’ve spent a large portion of my life in hospital, including some admissions lasting over a year.
The tough times
The good times
Living with Complexity
My medical history is complex, to say the least. Here’s what I live with every day:
Determined & Resolute
All of the above has had a dramatic effect on my life. I’ve been written off at nearly every turn. School, college, my social life, relationships. My dream of becoming a paramedic was snatched away when I lost my sight to the point where I can no longer hold a driving licence. But I still dream of becoming a nurse one day.
Despite everything, I try to never let things get me down. I always look for the positives in whatever situation I find myself in. Being medically complex is not fun by any stretch of the imagination, but I’ve learnt so much. Not only about myself and my conditions, but about how I might use that knowledge to help others.
When I’m Not in Hospital
When I’m well enough, I love attending live music. I’ve seen my favourite band, the Kaiser Chiefs, on many occasions around the UK. I’m also hoping to stay fit enough to see Bon Jovi at Wembley this September. They’re the band that started my love of music back in June 2013, when I was just seven.
I also love musical theatre and have seen many West End shows, some of them several times. Closer to home, I enjoy baking and I’m hoping to start playing my keyboard again soon.
None of this comes easily, no matter how well I’m feeling, because of the amount of equipment I rely on (wheelchair, feed pump, to name a few). But I am determined and resolute that all of this won’t define me. It will strengthen me.
Giving Back
Whenever I can, I like to help others who are less fortunate than me. Over the last ten years, I’ve raised around £50,000 for charities including The Brain Tumour Charity, the Childhood Tumour Trust, and various wards at QMC Hospital, some of which has been covered by the local press and BBC Television.
This ball is the next chapter of that journey, and I’d love for you to be part of it.